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Journey to Wellness
Each month I have this unique opportunity to share my MS story. Years ago I chose to be "enabled" by my uninvited guest (which is what I have always called my MS) rather than "disabled," and I believe that each one of us has the opportunity to make that same choice. My task is to help you believe that also. I believe my body is designed to be self-healing, and that my challenge is to learn how to "listen" to my body and to help it turn on that innate self-healing process. Whether you are new to Journey to Wellness, or you have been with me for years, I warmly welcome you to the world-wide network of Journey to Wellness readers. This month's issue is about celebrating the awesome you! Wherever you live on this planet, thanks to the Internet and the rapid rise in "social networking," it seems that we are all becoming more aware of how truly alike and connected we are. Enjoy Journey to Wellness this month.
___________________________________ Things are likely to change! - A fact of life.
Last month I wrote about the awesome you. I hope you took that message to heart, because I know that each and every one of you have incredible capabilities.
Then two weeks ago, very unexpectedly our President resigned due to health reasons, and I became president of this organization. I was really shocked to say the least. I had not expected the resignation. So I have been thrust into a new learning situation. I often talk about mirror conversations with yourself - I have had a lot of those in the last couple of weeks!
My goal is to handle this new assignment, as well as continuing all the other things to which I am committed. My first commitment is to you, my loyal readers and Internet family, who have been with me in many cases for years. As the old saying goes, where there is a will, there is a way! So now I have another opportunity to practice what I teach!
I hope this issue of Journey to Wellness will help you to see a new image of who you are (perfect), and your capabilities (unlimited), and that something in this issue "speaks" to you.
Last month many of you responded with notes about the April issue, telling me that I am awesome. In each case I replied that each one of you is awesome, and that what I do is simply provide a mirror in which you may see yourself; that is, who you really are. __________________________________________ If you are not on my newsletter mailing list, or you are changing e-mail addresses, please fill in this request to join the list and you will always receive a brief e-mail when a new newsletter is available at the website. Please also know that my mailing list is never used by anyone else for any other purpose: Do you enjoy reading this free on-line newsletter? Do you appreciate the fact that there are no sponsoring commercial ads cluttering the pages of the newsletter and website? Then please consider making a contribution to help sustain them. I have always wanted Betty's house to be commercial free, and that is still my intention. Nevertheless everything connected with the website and newsletter costs money, and over time I learned that I could not do it alone. I cannot say strongly enough how appreciative I am for those of you who help make the newsletter and Betty's House possible. Thank you just doesn't seem adequate to express how grateful I am. A few months ago when I learned to make a short motivation video for my personal use I showed it to friends and everyone wanted it. Out of that came the idea of offering them as a premium when someone made a donation of $25.00 to this newsletter and the work of Betty's House . . . Life After MS. I then spent many, many hours over several months developing five of them.
I call them
LifeDesign Videos, and since I introduced them the response has
been very
gratifying. Each video is from 3-1/2 to 5 minutes in length and
incorporates affirmations and appropriate images, backed up with motivational
music. The five videos currently available are: Designing My Abundant Life Daily Lifestyle - Lady Daily Lifestyle - Man → YOU MAY WATCH A SHORT SAMPLE VIDEO BY CLICKING HERE. ← If
you received one of the videos before I was able to make them available FOR ADDITIONAL INFORMATION ABOUT THE VIDEOS, CLICK HERE. You may mail your contribution to Iams House, 139 Inner Circle, Davis, CA 95618, or use credit card or Pay Pal at my on-line shopping cart here. When making your contribution through the shopping cart, please indicate under "shipping instructions" which video you would like to receive. The on-line shopping cart makes it very easy, You will receive instructions, normally the same day, for downloading directly from my website. If you send a contribution by mail, please be sure to include your e-mail address and video selection. Your contributions make the website and this newsletter possible.
THANK YOU FOR SHOPPING AT MY AMAZON STORE: Just click on this Amazon link, then when it opens bookmark it in your "favorites" and it will be easy to always use it. Each order you place using this Betty's House Amazon link means a few cents is returned to Betty's House to help pay the monthly expenses for the website and mailing list maintenance and publishing. It doesn't amount to very much, but every little bit helps. Thanks so much.PLEASE NOTE:
Bon
Appétit
- Healthy Food Tips and RecipesRecipe courtesy of Kim Lyons, Internet weight loss guru 14 oz. can of artichoke hearts in water, drained and chopped 1 large tomato, seeded and chopped 1/4 pound white mushrooms, chopped 1 ripe avocado, peeled, pitted, and chopped 1/3 c. scallions, chopped 1/4 c. fresh lime juice 1 T olive oil Salt, cayenne pepper, and black pepper to taste
Combine all ingredients except avocado in large bowl and mix well. Marinate for 1 hour. Add chopped avocado, mix and serve.
NUTRITION FACTS: Makes: 8 servings Calories: 91 Fat: 7 grams Protein: 2 grams Carbs: 5 grams Fiber: 3 grams
Serve Ceviche with baked whole-wheat pita triangles! Here’s how: cut a whole-wheat pita into wedges; spritz with I Can’t Believe It’s Not Butter spray, olive or canola oil, and sprinkle with garlic powder. Bake in oven at 400 degrees, turning frequently, 5 to 10 minutes, until crispy. Watch them carefully because they can burn very rapidly. These are also great served with Hummus.
This Civeche is an excellent take-along-to-a-party dish, or to serve when friends are stopping by for cocktails or a glass of wine. Don’t make too far ahead because the avocado tends to oxidize and turn into a brown “mess.”
Breakfast is generally considered to be the most important meal of our day. I tend to tire easily of the same old breakfasts. Here is a yummy and healthy breakfast that you can create in minutes. Try this for a delightful change of pace, especially on a warm summer morning. BREAKFAST PARFAIT In a tall parfait glass (a drinking glass works equally well) layer: YOGURT, A CRUNCHY CEREAL, FRESH FRUIT, AND GRANOLA OR CHOPPED NUTS OF YOUR CHOICE
Eat with a long spoon.
If you love sweet potatoes, as I do, here is an incredibly easy, healthy and tasty sweet potato side dish. It comes from Ellie Krieger, nutritionist on the Food Network. Enjoy
Sweet Potato-Pecan Casserole Note: I bake this in several serving size ramekin dishes, freezing some for other days. Baking time will vary with the size of your baking dishes, so be careful if you use small baking dishes as I do. I set my timer for 30 minutes and then check for doneness
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Meditation
~ Over the years I probably have received more mail about meditation than any other subject. Therefore I write often about this topic.
In my experience all the above are true. Interestingly many are still in a quandary about how to learn to meditate. Questions I get arrange from "What is meditation?" to "How do I get started?" Actually there are so many facets to meditation that many, many whole books have been written on this subject. From the vantage point of having been a regular and serious meditator for many years, it is challenging for me to remember when I had some of the same questions to may have.
I think everyone's experience of meditation is probably somewhat different. Meditation is simply turning off the constant mind chatter that we all experience. Buddhists call that "monkey mind." Until one learns to meditate the only time we experience that state of mental silence is when our conscious mind sleeps. This is a very basic, simple "level one" explanation of what meditation is. More on advanced levels a little later.
Oh yes, that state we just talked about, when we still the mind chatter, is called an alpha state. It is somewhat like the state between being awake and asleep. I learned meditation years ago at the Chopra Center in San Diego, and was taught to call that state "the space between your thoughts." Whatever one calls it, getting to that place is the ultimate goal of meditation.
There are many different ways to get started with meditation. Some people find it very easy to just focus on their breath, while most focus on mentally (thinking) repeating a word or phrase. That word of phrase is called a mantra. Its purpose is simply to help you still the mind chatter.
I have known people who had to make the first step just simply sitting and listening to very soothing music to help them quiet the mind. Some people find it helpful to visualize a very peaceful place. Once you find the approach that works for you, you will be able to put yourself into that alpha state very easily and rapidly.
Levels of meditation:
1] Stress reduction 2] Tuning in to your body 3] Connecting with the spirit within 4] Listening to your inner voice
THERE IS NO RIGHT NOR WRONG WAY TO MEDITATE! Each person will find their own special approach. Some people may need to listen to a recorded guided visualization in the beginning.
If you have never meditated, please use this guide to help you get started.
In the past I have referred my readers to Marc Stecker's Wheelchair Kamikaze blog. Marc is a brilliant writer and regularly shares his wit and wisdom with those of us fortunate enough to have found him on the Internet. Marc's photos of New York City, taken from his motorized wheelchair, are incredible. Many have a deeply spiritual quality. This particular one, which I share here with Marc's permission, is a beautiful metaphor for meditation.
At first glance one sees this photo as a black and white. Then one becomes aware that there is a yellow light atop the lamp post. That is exactly what meditation is to me - a light in the darkness. The more I concentrate on the light, the more I realize that this photo is not about the snow, nor the gray day, but only about the light. I see the light representing the spirit within all of us, and when we meditate we are able to tune in to that light. Eventually I hope you may be consumed by that light and perhaps have an experience of falling into the "gap between your thoughts" wherein you lose touch with time and space. It is truly a life changing experience like no other.
Thank you Marc for allowing me to share your beautiful photograph. When I communicated recently with Marc about this photo, he sent this note:
". . . It's not one of my "wheelchair photos," though, as that particular shot was taken before I was hit with MS, during a lull during a snowstorm in Central Park. I called in sick from work that day, for the express purpose of taking photos of the virgin snow in the Park, and to enjoy the company of my snow crazy Labrador Retriever (now, sadly, deceased). Fond memories . . ."
Be sure to check out all of Marc's New York City photos at his Wheelchair Kamikaze blog, and while you are there, subscribe to his mailing list. You'll be glad you did.
Five "Clean Eating" Tips from Qi Gong Master Lee Holden Chew more. Practitioners of Chinese medicine recommend that you "drink your food," meaning chewing your food more to help digestion. This also causes you to eat more slowly, which helps avoid overeating. Drink more water. All bodily functions depend on the flow of water. Every cell requires hydration. Here, the Qi Gong experts advise you to "chew your liquids," meaning to taste them and meditate on how they cleanse the body and give life. Eat more fruits and vegetables. Not only do they taste great, but bite for bite they offer fewer calories and more vitamins and nutrients than do many other food choices. Drink warm beverages. While ice-cold drinks are refreshing, the body must warm up any liquids to its internal temperature of 98 degrees. This warming process requires expending energy that could be better used by your digestive system to extract nutrients and fuel from your meal. Practitioners of Chinese medicine believe that warm beverages also help keep digestive acids balanced. Eat plenty of anti-oxidants. Fresh fruits, vegetables, legumes, herbs, and spices may help clean out "free radicals" and help prevent cell damage.
Special for my Lady Readers
HONEY BODY SCRUB FROM YOUR KITCHEN
1 t. pure honey 1/4 c. light olive oil 1 c. granulated sugar 2 t. fresh citrus zest
This scrub comes from a well-known spa, and speaking from personal experience, it leaves your body glowing and feeling wonderful. With winter's dry skin challenges, you'll love this easy and inexpensive scrub.
From here and there on the
Internet
Author Eckhart Tolle, whose excellent world-wide best selling book, A New Earth is one of my personal favorites, tells us that, although it’s important to accept ourselves and our emotions, it’s also (really!) important to notice what behaviors and thoughts consistently lead to suffering and to QUIT DOING THOSE THINGS and to QUIT THINKING THOSE THOUGHTS!
He says it’s sort of like getting food poisoning from eating certain types of food but then, for some wacky reason, continuing to eat those foods. And, as a result, you’re sick again and again and again. Makes no sense. Right?
So check yourself out and see if you’re giving yourself thought and behavior poisoning on a regular basis. And then quit doing that!
Thanks to a reader who found this just-for-fun video on You Tube. It's called,
Dr. Love Raps “THIS IS WHY I DO QIGONG”
You'll find it at:
Enjoy.
From the humorous to a very important serious nutrition issue. Please everyone, take a few minutes and watch this very important lecture on YouTube.
SUGAR: THE BITTER TRUTH - By Robert H. Lustig, MD, UCSF Professor of Pediatrics in the Division of Endocrinology
http://www.youtube.com/watch?v=dBnniua6-oM
Dr. Sanja Gupta on CNN also featured Dr. Lustig, and he was a guest of Dr. Oz, discussing this lecture. Dr. Lustig's video will really make you think.
UPDATE ON CCSVI
▲ If you have funds to donate for MS research, may I suggest that you consider Dr. Gary Siskin's study. He is one of the brave physicians who early on began to treat people with MS to reverse the obstructed blood flow which is at the heart of CCSVI.
Make your check to:
Capital Region Medical Research Foundation MS Study
Mail to:
Capital Region Medical Research Foundation Attn: Kim Kurtzner 711 Troy Schenectady Road, STE 201 Latham NY 12110
▲ Be sure to read the following summary of CCSVI news posted 4/23/2011.
Are patients distorting the science? by CCSVI in Multiple Sclerosis
Posted by: Marie (ccsvibook.com)
http://ccsvi-ms.ning.com/profiles/blogs/are-patients-distorting-the
▲ Baylor College of Medicine, home of famed heart surgeon Dr. Michael DeBakey, now offers CCSVI Treatment.
Be sure to read the article referenced here. It gives a lot of information about CCSVI in general, as well as Baylor's treatment program:
http://ccsvi-ms.ning.com/profiles/blogs/baylor-college-of-medicine-now
▲ There is an important west coast CCSVI conference coming in mid-May in San Diego. Here are the particulars:
2011 CCSVI CONFERENCE Sponsored by the Hubbard Foundation
Saturday, May 14, 2011, 9am-4pm Sheraton, Harbor Island, San Diego, CA
Partial List of Speakers Include: Giedrius Buracas PhD, UCSD Jack Burks MD, MS Association of America Michael Dake MD, Stanford University Justin Gooding MD, Palomar Pomerado Hospital E. Mark Haacke PhD, Wayne State University David Hubbard MD, Applied fMRI Institute Donald Ponec MD, Palomar Pomerado Hospital Richard Saxon MD, Palomar Pomerado Hospital
Pasted from <http://hubbardfoundation.org/2011_ccsvi_conference_2011_san_diego_ca.html>
▲ Drs. Siskin and Mandato have published their findings about the safety of CCSVI treatment in the Journal of Vascular Interventional Radiology. You'll find details at:
http://www.jvir.org/article/S1051-0443(11)00005-4/fulltext
▲ Here is a link to Ashton Embry's Direct-MS.org Facebook essay about this BNAC study. You will really want to read this:
Buffaloed: The anti-CCSVI Bias of the University of Buffalo Researchers and their Unsupported Interpretations
by
DIRECT-MS on Tuesday, April 19, 2011 at 4:37pm Introduction
Last week researchers from the University of Buffalo published the results of their 2009 research on the prevalence of CCSVI in various groups of people including 289 persons with MS, 21 persons who had experienced a clinically isolated syndrome (CIS) (often a precursor to MS), 163 healthy controls and 26 subjects who were suffering from other neurological diseases. The paper was made available online on the website of the medical journal Neurology. Here's a link to the entire article.
Pasted from <http://www.facebook.com/betty.iams/posts/168589546528527>
Please note that this BNAC study shows that people with MS do have CCSVI too! My thanks to Denise Manley for sending this along.
I'm including the following research report because it makes me so angry. See my note below.
Adeona's Multiple Sclerosis Clinical Trial Receives $1,594,553 Grant
ANN ARBOR, Mich., May 3, 2011 /PRNewswire/ -- Adeona Pharmaceuticals, Inc. (AMEX: AEN), a developer of innovative medicines for serious central nervous system diseases, announced today that after scientific review, the ongoing clinical trial of its Trimesta™ (oral estriol) drug candidate for multiple sclerosis (MS) has received an additional $1,594,553 in grant funding from the National Institutes of Health/National Institute of Neurological Disorders and Stroke (NIH/NINDS). The clinical trial is led by Rhonda Voskuhl, M.D., Director, University of California, Los Angeles (UCLA) Multiple Sclerosis Program, UCLA Department of Neurology. Along with the recent grant award of $409,426 received from the National Multiple Sclerosis Society (NMSS), this NIH/NINDS grant award should support the ongoing Trimesta clinical trial to its completion.
"The goal of this clinical trial is to demonstrate a reduction in the rate of relapses in female MS patients with a treatment regimen of oral Trimesta added to the standard of care Copaxone®. MS is a debilitating disease, therefore, slowing the progression of the disease could potentially allow these patients to achieve a more normal quality of life," said Dr. Voskuhl. "We are very grateful to the NIH for supporting this important mission. Their commitment to pursuing estriol as a novel treatment for MS has been unwavering."
This ongoing clinical trial previously received a $5 million grant from the NMSS in partnership with the NMSS's Southern California chapter, with support from the National Institutes of Health, $860,440 in grant funding through the American Recovery and Reinvestment Act, and recent additional funding of $409,426 from the NMSS. In November 2010, Adeona announced that it was awarded $244,480 under the Qualifying Therapeutic Discovery Project Program to support research and development expenses related to the Company's MS program.
The 150-patient, randomized, double-blind, placebo-controlled clinical trial of Trimesta is currently underway at 15 centers in the United States. Investigators are administering either Trimesta or matching placebo in addition to glatimer acetate (Copaxone®), an FDA-approved therapy for MS, to women between the ages of 18-50 who have been recently diagnosed with relapsing-remitting MS. With 133 out of 150 patients enrolled in the clinical trial as of May 1, 2011, the Company anticipates full enrollment by the second half of 2011. Additional information regarding this multiple sclerosis clinical trial is available at http://www.clinicaltrials.gov/ct2/show/NCT00451204.
"We are very pleased that the Trimesta MS clinical trial has been awarded over $8 million in grant funding by organizations such as the NIH, NMSS and other third party groups. This support demonstrates independent scientific review of the clinical work being conducted by Dr. Voskuhl and provides funding for our MS program that is non-dilutive to our shareholders," stated James S. Kuo, M.D., M.B.A., Adeona's Chairman and CEO. "We are also excited to be exploring new opportunities with Dr. Voskuhl that could further expand our MS clinical program beyond the current trial."
PLEASE NOTE: Our U.S. tax dollars are funding this Adeona Trimesta clinical trial in yet another attempt to develop outrageously expensive and questionable drugs to provide symptom relief for multiple sclerosis. Meanwhile the MS community begs and pleads for funding for CCSVI. We MUST - all of us - continue to scream about the inequities of this funding. We must continue to make our voices heard. I urge all of you to get involved.
FROM MY MAILBOX
Thanks for your note P.R. Your have made great selections to get started on a healthier lifestyle. Responses like yours make me remember why I continue my work on the Internet. If I have helped even one person to truly realize their potential, then I feel validated.
Thanks for another great newsletter. You have truly made a difference in my life. I would like to ask a question. You write about how powerful affirmations are, and I have tried writing and reading them, but they don't seem to make any difference. I'd appreciate any insight you can offer. Thanks again for all that you do. /s/ Roberta
Hi Roberta. Thank you for writing and for your question. It is one that I struggled with for a long time. As I got your note I was reading a book by Dr. Judith Orloff, Emotional Freedom: Liberate Yourself from Negative Emotions and Transform Your Life. In it she says:
"Stand in front of a mirror and sincerely say to yourself in a loving, appreciative tone, "I look terrific and I'm a fantastic person." Stay focused on your positives. Then feel, don't think. Notice how your body reacts. Are you breathing easier? Do your shoulders relax? Does your gut tighten? Does your energy rise? Do you feel happier? Lighter? Freer? Also, note any other changes."
This is an example of a positive conversation with yourself, and the emotions generated. Those positive emotions are what we need to experience when we repeat our affirmations.
For those of you who have one of my motivation videos, all based on positive affirmations and accompanying images, please remember that the more you generate the positive emotions Dr. Orloff writes about, the more effective your affirmations will be.
I always watch one or two of the videos every day, and I have learned to say the affirmations loudly and with all the emotion I can engender, as I watch. The more I can create the appropriate positive emotion, the more effective my affirmations will be. Always remember that affirmations are a way to reprogram our subconscious mind.
The key - "Don't think . . . just feel!
Thanks for another great newsletter. Betty. I just wanted to tell you what a difference your Spirituality video has made in my life. It is truly a gift. Thank you for having the courage to just be who you are. /s/ John K.
Thank you John. You - and all my readers - are very special to me!
Featured Books, DVD
Exercise Programs and VideosPlease, everyone, do not sit around and wait for testing and treatment if warranted for CCSVI. Even if that becomes the standard MS treatment down the road, you need to get moving and improve your quality of life NOW. Even those who have the corrective procedure done still have to work to recover their quality of life. How do you do that? I suspect that you already know. Start a simple daily meditation ritual, and move your body with healthy exercise. Oh you say you can't exercise? Excuse me, but that is rubbish. There is no such thing as a person who can't exercise. You can do a very effective exercise program sitting in a wheelchair, or even lying in bed. You just begin with some simple deep breathing and very simple arm movements. EVERYBODY CAN IMPROVE HIS/HER BODY WITH A COMMITMENT TO EXERCISE. If you don't have them, order Yoga for MS (for strength) and/or Tai Chi/Qi Gong for Seniors (for healing) Gentle Fitness (for overall fitness) and get moving. PLEASE DO NOT WAIT! Then pick two or three things from one or two of these programs and get started. Soon you won't believe what a tremendous improvement you will experience. The only thing hindering you is your own lack of enthusiasm and passion. There is no person who cannot improve the quality of his or her life with exercise. Just get moving! I absolutely know that one of the primary reasons I live a normal, healthy life today is because of these exercise programs. Come on. Get started today!
CHECK OUT
THE DETAILS OF THESE VIDEOS AND FEATURED BOOKS HERE As we celebrate Easter throughout much of the world, I hope you experience a renewal of spirit. As I sit working at my home desk today, looking out on my and a neighbor's patios, I appreciate her incredibly beautiful rose garden, which she tends with loving care. Just as the roses come back after a dormant winter, we too can experience that same renewal by tending our own healthy self-love garden.
That's all for now.
Sincerely, Betty PLEASE NOTE: I AM NOT A MEDICALLY TRAINED PERSON, AND I DO NOT GIVE MEDICAL ADVICE. BUT I HAVE BEEN A VERY SERIOUS STUDENT OF MULTIPLE SCLEROSIS FOR MANY YEARS, AND I HAVE DEVELOPED A PROGRAM THAT HAS KEPT ME SYMPTOM FREE FOR A LOT OF YEARS NOW SINCE PRIMARY PROGRESSIVE MS FIRST MADE ITS APPEARANCE IN MY LIFE.
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