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Journey to Wellness
Each month I am honored to have this unique opportunity to share my MS story. Years ago I chose to be "enabled" by MS rather than "disabled," and I believe that each one of us has the opportunity to make that same choice. My task is to help you believe that also. I believe my body is designed to be self-healing, and that my challenge is to learn how to "listen" to my body and to help it turn on that innate self-healing process. Whether you are new to Journey to Wellness, or you have been with me for years, I warmly welcome you to our world-wide network of readers.
IN
THIS ISSUE:
____________________________________ I seem to have created quite a storm when I jumped into the fray over Chronic Cerebrospinal Venous Insufficiency (CCSVI) and its possible role in the development of the syndrome known as multiple sclerosis. Hundreds of you have written to me with many how, what, where and when-to-proceed questions regarding testing and corrective procedures. It is important to remember that I am not an expert on CCSVI. I am trying to gather and share information at this time. It is my goal to keep you informed with up-to-date information and sources that is as accurate as possible, through the monthly issues of this newsletter. I hope the follow-up information included this month will help answer some of your questions. Lots of good stuff this month, so let's get at it. If you are not on my newsletter mailing list, or you are changing e-mail addresses, please fill in this request to join the list and you will always receive a brief e-mail when a new newsletter is available at the website. Please also know that my mailing list is never used by anyone else for any other purpose: Do you enjoy reading this free on-line newsletter? Do you appreciate the fact that there are no sponsoring commercial ads cluttering the pages? Then please consider making a contribution to help me sustain the newsletter. I have always wanted Betty's house to be commercial free, and that is still my intention. And I never wanted it to be paid subscription only. But be that as it may, everything connected with the website and newsletter costs money, and I cannot do it alone. Even a small amount helps and is greatly appreciated. The challenge to sustain the newsletter and the website never ends. Any contribution you would like to make may be sent to Iams House, 139 Inner Circle, Davis, CA 95618, or by credit card here. My on-line shopping cart makes it easy for you to make a donation. YOU make the website and this newsletter possible. Without your help both will disappear. For those of you who have made a donation in recent weeks, thank you many times over and big hugs for helping me meet the obligations necessary to support Betty's House and this newsletter. THANKS FOR SHOPPING AT MY AMAZON STORE: Just click on this Amazon link, then when it opens bookmark it in your "favorites" and it will be easy to always use it. I love Amazon's convenience, which really makes for easy, trouble-free shopping. Each order you place using this Betty's House Amazon link means a few cents is returned to Betty's House to help pay the monthly expenses for the website. It doesn't amount to very much, but every little bit helps. Thanks so much.PLEASE NOTE:
Self DiscoveryThe process of self-discovery is fascinating to study, but even more fascinating to experience. The loss of my son four years ago this November, and trying to understand the how and why that my family had to experience that painful loss, lead me into an intense study that continues to this day. It was during that process that I came to a realization that I had completely defeated MS. Then I continued to dig for answers about how I had done that. My regular readers know that I have always said I did not know specifically the answer to that question. I now feel that I know how to respond to that question. 1) Remember when I first began to write about our Internal Guidance System (IGS), our body's vital energy, and how we can use that to communicate with our body? That was probably step one of my realization. Today I think of my IGS as my internal compass, which helps me navigate through life. As I have increased my awareness of its presence, the more I benefit from its guidance. 2) Next I began to get insight into just what the IGS is. I believe it is our connection to the Universal force that holds our galaxy in space, and that powers our bodies. Whether we call that force God, or individually we think of it as our soul or perhaps awareness, it doesn't matter so much what we call it - just that we recognize it. And also learn more of how to use it consciously. 3) I now believe the two most important aspects of my recovery were daily meditation, through which I developed a very strong belief (I never doubted), intention (exactly what I wanted), and inner knowing (of who I am), and Qi Gong/Tai Chi (and early on adapted yoga) and breath work, which work with the body's energetic system that I came to call the IGS. Can anyone do what I did? Absolutely! But you must develop your belief, your knowing, and your intention to heal. Actually it is pretty simple and deceptively easy. I can't even begin to tell you how hard I worked to learn these very simple truths. I tried everything, and spent a lot of money along the way. My retirement funds today would be much bigger if I had all the money I spent searching after everything I ever heard of for several years. Including, but by no means a complete list, were chiropractic, acupuncture, herbalists, massage therapy, 7-8 years of a very strict non-dairy and gluten free food plan, every supplement I heard of that might be helpful, etc., etc., etc. In the end I finally over a period of years realized more and more that the answers I sought were inside of me. Everything I just related is not about MS at all. It applies to anything we may need to heal (remember that healing is synonymous with change). When you are truly ready you can find your way through the maze to healing on the other side. I was lead to think a lot about this in the past few weeks because of being inundated by people wanting to rush out and have the CCSVI corrective procedure done. Why is it that huge numbers of people are not beating a path to my door to learn to duplicate what I have done, when it really is simple and easy? I will leave the answer to you. But my guess is that it begins with a society devoted to instant gratification. We don't want to work at changing our lifestyle, nor do we want to learn to meditate, or make a firm commitment to exercise regularly. Oh we say we want to do those things, but in actuality we don't. We would rather wait for the "cure," whatever package it may be wrapped in. The 24th of this month I will have my 74th birthday - and no, I neither look nor feel like what I thought years ago that 74 years of age would be like! - but as long as I have breath and a functioning computer and Internet connection I will continue to try to convince everyone who wants to heal, whatever they wish to heal, that they can indeed accomplish that. And I hope the Universe allows me to do that. A few readers have written to me asking why I no longer write about my personal practice of yoga. The truth is that much as I benefited from the Yoga for MS routine for years, I can not personally do the routine any longer because of painful degeneration in my low back and right hip, mostly from a bad fall about 30 years ago. I just this week completed a series of x-rays to determine just what is happening and causing pain. But I have continued my Qi Gong practice - much of which I can do seated, and my internal medicine doctor recommends walking, walking, and more walking. It is very important to note that none of this has anything to do with my MS history. I was able to stop my MS in its tracks, and share with you the process, but alas I cannot stop the aging process. We can however age healthily by continuing to practice a healthy lifestyle and I concentrate on doing that. As I look back on my personal MS story, it was a mere "bump" in the road of my life. It was also a great teaching tool for me. I would not today trade what it taught me in exchange for the MS journey I experienced. It is now 16 years since I was diagnosed, and 18+ years since my symptoms began. And thanks to my healing/learning journey, this is absolutely the best time of my life so far! Enough of my soapbox for this month.
Navigating the Internet - It can be daunting indeed!The Internet is such a powerful communication tool today. One of my goals is to help you navigate that vast information source. It seems like every few days I learn of another real nugget on YouTube. I want to share something I discovered a few days ago, an exciting short lecture from the TED TALK organization by Dr. Sue Morter, who's an internationally recognized authority on bridging Science, Spirit and Human Possibility. Check out the video below and you'll see exactly why I always tell you that YOUR energy is extremely POWERFUL. Even beyond what you can imagine with the ability to change, create, and alter your reality. This is how healing happens. http://www.youtube.com/watch?v=kKqpiS9tjgQ&feature=player_embedded#! There is such a powerful message in Dr. Sue's talk that I have watched it several times and always learn more from it each time. Dr. Sue's talk refers to "epigenetics," which we first became acquainted with through the work of Dr. Bruce Lipton (see his book The Biology of Belief). Remember that epigenetics means beyond genetics. Here's another one by best selling author Mike Dooley called Thoughts Become Things!. Very powerful also. Enjoy. http://www.youtube.com/watch?v=8x4sVR67wCk&NR=1
I have wonderful memories of sharing Dr. Seuss's magnificent fables with my son Kevin when he was a little guy. Oh how he loved Dr. Seuss. Here is a favorite relevant quote of mine:
"Think left and
think right, and think low and think high. - Dr. Seuss I can still see Kevin swinging his arms high and low, and left and right. Thank you for allowing me to share that with you.
Bon
Appétit
- Healthy Food Tips and RecipesReader Pamela T. in Ohio sends along the following two recipes this month.
3 bananas Just blend in the blender and you have yourself a great tasting mousse. I put some cacao nibs on the top too! Fantastic. Thin with a wee bit of water if necessary. Thanks Pam. I loved this. Since I only cook for one I made 1/2 the recipe and it worked fine. A wonderful "chocolaty" treat.
1
bunch kale, stalks removed and discarded, leaves thinly sliced (black kale is
especially good) In large serving bowl, add the kale, half of lemon juice, a drizzle of oil and a little kosher salt. Massage until the kale starts to soften and wilt, 2-3 minutes. Set aside while you make the dressing. In a small bowl, whisk remaining lemon juice with the honey and lots of freshly ground black pepper. Stream in the 1/4 cup of oil while whisking until a dressing forms, and you like how it tastes. Pour the dressing over the kale, and add the mango and pepitas. Toss and serve. Pam says: This salad will keep in the refrigerator for several days because the kale is very fibrous so it takes a while for it to break down. This is fabulous and has so much nutrition. Honey Mustard Glazed Salmon Fillets
2 T fresh lemon juice In an oiled shallow baking dish, combine lemon juice, Dijon, honey, and lemon zest. Stir together. Season both sides of salmon fillets with salt and pepper and place in the baking dish. Flip salmon to coat in glaze. Bake immediately or cover with plastic wrap and refrigerate for up to 3 hours. When ready to cook, preheat oven to 400 degrees F and bake 10 minutes or until fish is fork tender.
Book Review -
The Gluten-Free Almond Flour CookbookI recently read an article in my local newspaper about an author, Elana Amsterdam, who was returning to Davis, where she grew up (and where I live), for her 25th year High School Reunion. It went on to relate how she had located in Colorado after college, and had become a very successful cookbook author. Her publisher had arranged a book signing while she was visiting her home town for the reunion. I was intrigued when I read the name of her cookbook. It is an exceptionally good resource for anyone who must cook gluten free. The author as a young adult developed Celiac disease and must never eat gluten. She also has a child who has the disorder. Her search for a good gluten-free flour lead her to discover almond flour. I wish I had known about her when I was living gluten free. It certainly is true that a good gluten-free flour is probably the biggest challenge the gluten-free cook faces. This beautifully illustrated book is available at Amazon, and I highly recommend it.
CCSVI FOLLOW-UPI was truly amazed at the huge numbers of people who have written to me about having the CCSVI testing and corrective procedure done. In addition a number of readers who have either had the procedure done or have it scheduled for the near future have been sending me lots of information. I am truly grateful. But I would have to be a full-time all day every day writer just to put it all together in proper form to share with you. Instead I have chosen to keep my sanity and share a lot of links with you and you can do your own foot work. First you should all be a Facebook "friend" on Denise Manley's page. She uses that to keep everyone up to date on the CCSVI progress in the U.S. and Canada, as well as time-line information on the theory and research. Here's the link on the time-line information: http://www.facebook.com/gabbycats#!/note.php?note_id=234671112210&id=110796282297&ref=mf If you are not proficient with using Facebook, then you will just have to learn to be. Denise is doing a tremendous service to the MS community, and even has a list of doctors who are doing the testing and corrective procedures in various places in the U.S. If you are unable to maneuver Denise's Facebook page to learn the what, how, when and where answers, send me an e-mail and I'll forward some of the rough material she has sent to me. It is very detailed but is just not in a form that I can quote here without a lot of editing. Here are some of the links I have received: One of the most insightful things I have read regarding the general CCSVI issue is located at: http://www.facebook.com/note.php?note_id=420187852210 I recommend you read it and remember. Here is another one of the best resource sites for CCSVI: http://bmctoday.net/evtoday/2010/07/article.asp?f=chronic-cerebrospinal-venous-insufficiency. Here's another great source. Just go to www.Facebook.com and do a search for "CCSVI in Multiple Sclerosis." There is a ton of information there. It is entitled: CCSVI in Multiple Sclerosis's Notes - Medical Hierarchies: Neurologists vs. Vascular Doctors Here is another good source for information: Most of these are coming to me from reader Karen A., who has had the corrective procedure done. There is a great Blog from Dr. Ashton Embry of Direct-MS.org. This is a must read about the MS Society. You'll find Ashton's blog posting at: http://ccsvi-ms.ning.com/profiles/blogs/why-national-ms-societies-are?xg_source=msg_mes_network Hi Betty. "This is the CCSVI Alliance link: http://ccsvialliance.org/ Very good stuff. It also has how to talk to your doctor and help yourself finding testing and treatment near you. It does send people back to the "This Is MS" site. They have some information, but nothing as up to date and complete as Denise's Facebook page. She lists doctors and sites that TIMS hasn't a clue about. But for those who can't get around Facebook, this is the next best thing. Thanks." /S/ Karen A. Here's another quote from Karen:
"There are a FEW neurologists on
board with us so far. They will all have to soon, or chance looking like
they are withholding treatment. Lawsuits are now being filed. What I am
amazed about is, like my doctor said, this is patient driven. He says the
patients know more than the doctors.....it's true. It was all done by
computers [and use of the Internet]. No doctor spread this news...no
reporters. What other diseases will be cured this way? Everyone pooling
their information and getting the work done. I consider myself the luckiest
woman in the world to be part of this."
Many, many thanks to Denise and Karen for sending me so much information to share with you. Denise and Karen are truly pioneers.
COMPUTER TIP - WHO KNEW?I have been glued to my PC ever since IBM made the first one, and I am generally considered a computer "geek" by my friends, but nonetheless I still stumble on new things that had somehow escaped me over the years. One I found quite by accident the other day may be helpful to you. In Microsoft Internet Explorer (which is how most of us access the Internet), in the lower right corner of your monitor is a little arrow (↓). Beside the arrow it normally says 100%. Click on that arrow and a little menu appears with various other percentages. Clicking on one of these little jewels will change the size of whatever appears on your monitor. Perhaps I'm the only Internet Explorer user who didn't know that, but I somehow doubt that. I discovered it quite by accident when I must have changed it without thinking and suddenly all the images on my monitor were too large. I went to the "help" menu, which is usually what I do as a last resort, and there was the answer. One of the joys of being self-taught. I had never noticed that arrow before.
From My e-mail BoxI received a note from an anonymous reader asking me to write more about my concept of how our immune response works. S/he also questioned my suggestion that MS - and probably many other disorders - are what doctors call auto-immune. My understanding of what that means is that the body's own immune response literally attacks a part of our body, the myelin in the case of MS. I have never believed that hypothesis. Our immune response is our body's primary healing system, and it defies all logic to believe that same response turns around and attacks us. The best friend we have is our immune response. During the first few months of life we carry the immune response we received from our mother. Then as that system begins to fade, we begin to be exposed to various bacteria, infections, etc., which build our own immune response. The frequent fevers of infants is the classic proof that this natural process is working. The fever is evidence that the infant is indeed building a healthy immune response. Early on in my own MS experience, the most talked about MS-related subject on the Internet was the fear that we might do or take something that would strengthen our immune system, and thus make MS worse. No one seems concerned about that any longer, but neurologists generally still insist on the calling MS "auto-immune." As I said last month, I truly believe that theory to be junk science. And the CCSVI theory seems to be backing up my theory. I am also sure that scientifically there is much more to be said about how our immune response works. But since I am not a scientifically trained person, I'll settle for my amateur explanation. Perhaps the oft-repeated auto-immune theory has just been repeated so often until it has developed an accepted "truthiness" by neurologists. Remember that it was never anything but a theory. Just think of the immune response as your self-healing best friend. For those who wrote about this, I hope this helps. For any of my readers who are trained in bio-chemistry feel free to contribute to this discussion. I welcome such contributions.
Thank you so much for covering the CCSVI story.
Every month when you publish your newsletter, it seems that there is something
in it that is just what I needed or wanted to know. Blessings to you.
I so much appreciate all you do for us. Thanks for writing Frank (and all the rest of you who wrote about the CCSVI story). There is a special joy that comes from doing what you absolutely do know that you are supposed to be doing, and I do know that this is what I am supposed to do at this point in time. LifeDesign Videos coming soon. For those of you who are patiently waiting for these to be ready, just a brief update. I have a group of friends evaluating the first one, and hopefully I'll be announcing availability soon. The early response is exciting. You'll be the first to know when they are available. In the meantime if you wish to do an early test of one, let me know and I’ll send along details.
EXERCISEPlease, everyone don't sit around and wait for testing and treatment if warranted for CCSVI. Even if that becomes the standard MS treatment down the road, you need to get moving and improve your quality of life NOW. How do you do that? I suspect that you already know. Start a simple daily meditation ritual, and move your body with healthy exercise. Oh you say you can't exercise? Excuse me, but that is rubbish. There is no such thing as a person who can't exercise. You can do a very effective exercise program sitting in a wheelchair, or even lying in bed. My good friend Max (in Canada) with whom I got acquainted on the Internet when it was in its infancy, used to say that if you don't do anything else but flay your arms about, you will gain strength and begin to get better. He took himself from beginning to consider some kind of assisted living to being a fully functioning human being with nothing but exercise. Max had been wheel-chair bound for years, so he spoke from personal experience. And you can do it too! You just start with some simple breathing exercises and very simple seated movement. EVERYBODY CAN IMPROVE HIS/HER BODY WITH A COMMITMENT TO EXERCISE. If you don't have them, order Yoga for MS (for strength) and/or Tai Chi/Qi Gong for Seniors or Gentle Fitness and get moving. PLEASE DON'T WAIT! Then pick two or three things from one or two of these programs and get started. Soon you won't believe what a tremendous improvement you will experience. The only thing hindering you is your own lack of enthusiasm and passion. I absolutely know that I live a normal, healthy life today because of these exercise programs. Come on. Get started today! CHECK OUT THE DETAILS OF THESE VIDEOS HERE
I have been studying a new book, The Healing Code, by Drs. Alex Loyd and Ben Johnson. It is a fascinating book about self-healing. I will do a review of The Healing Code after I have personal experience working with it in the coming weeks. After reading the entire book, and beginning the exercise they give which is called a code, and which is thought to heal cellular memory stress, generally considered today to be the cause of all dis-ease in the body, I got to the very last chapter and found something I had never read or heard about breathing. You all know my personal belief in and practice of breathing exercises. But Drs. Loyd and Johnson not only emphasize deep breathing, as I do, but they add a few elements that are totally new to me. It is designed to totally relieve what they call situational (current) stress that we experience in our everyday lives. They call this exercise Instant Impact. Here is how they teach it: 1. Rate the intensity of your stress from 0 to10 (so you can track the efficacy of the breathing technique). 2. Place your palms together in any position that's comfortable. You may interlace your fingers, or use the prayer position. 3. Focus on the stress you want to leave your body - physical, emotional or spiritual. 4. Do what they call Power Breathing for 10 seconds, as follows: Breathe rapid and power "belly breaths" in and out, by forcefully blowing out and sucking in through your mouth. Use your diaphragm so your belly moves out as you breathe in, and moves in as you breathe out. (If you feel lightheaded, breathe the same way but reduce the intensity.) As you do this breathing pattern, visualize something positive. It can be the stress leaving your body, or a peaceful scene, or whatever opposite thing you want instead of the stress. You might just say in your mind something like "peace," or "patience." Drs. Loyd and Johnson state that this simple exercise will interrupt the stress cycle and provide a similar feeling to how you'd feel after 20 minutes of combined vigorous exercise and meditation, in mere seconds. The following quote is from The Healing Code: "The physical Law of Inertia states that nothing changes unless it is acted on with enough energy, and Power Breathing creates tremendous internal physiological power. Power Breathing adds great force to this process - a high-energy fuel of oxygen and physical effort. Just as the wind is a primary source of power in the world, our breath is our personal source of wind power." Drs. Loyd and Johnson suggest that one should do this Power Breathing for 10 seconds three times a day. I hope you will try it and then share your personal results with the rest of us.
A Beautiful Gem from the InternetONE AND ONLY YOU Every
single blade of grass, From
something small, like grains of sand, How
foolish then, to imitate— There’ll
only be just ONE of ME That is
where it all starts - James T. Moore
"Back
at You," as Ellen DeGeneres says!A number of you wrote thanking me for the amazing 5-minute Paul Scheele meditation "gift" I gave to all of you last month. Actually it is Paul Scheele's gift to all. If you didn't download it, go to last month's newsletter, and do it now. I promise you will be glad you did. Paul is wonderful, and that he has made this available for free to everyone is pretty amazing. Have a wonderful rest of the summer, wherever you live. Of course, if you are in Australia or New Zealand it is winter and you are probably pretty tired of the cold! That's it for now. Blessings to all. Betty PLEASE NOTE: I AM NOT A MEDICALLY TRAINED PERSON, AND I DO NOT GIVE MEDICAL ADVICE. BUT I HAVE BEEN A VERY SERIOUS STUDENT OF MULTIPLE SCLEROSIS FOR MANY YEARS, AND I HAVE DEVELOPED A PROGRAM THAT HAS KEPT ME SYMPTOM FREE FOR A LOT OF YEARS NOW SINCE PRIMARY PROGRESSIVE MS FIRST MADE ITS APPEARANCE IN MY LIFE.
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